Tuesday, January 29, 2008

More Ups and Downs

To all who check this daily, I must again apologize. It has been a few days since I last updated. We are getting into a routine of almost daily therapy, resting, therapy homework, more rest, and then time for a little fun.

On Sunday, Jordon made dinner for the family. He made elk roast, mashed potatoes, mixed vegetables, and I made bread and the dessert. He got two thumbs up from all who had dinner. He is an excellent chef!

Yesterday Jordon had phsycial therapy. He is gettin stonger everyday. He wa suposed to have occupational therapy, but the weather was terrible. We had white out conditions for a little while. The occupational therapist couldn't make it out of the rehab center parking lot because the snow was so bad.

Today, Jordon had more therapy, speech therapy (his favorite, NOT). He was really teasing the therapists had cracking several jokes, which the therapists enjoyed. They love watching his sense of humor 'emerge' or progress.

Right after our therapy sessions, we got to make the pilgrimage to the University of Utah hospital, well the Huntsman Cancer Institute, but they are all interconnected, so its basically one and the same.

We met with two oncologists, a radiologist oncologist, and then a chemo oncologist. It was a very hard afternoon. We were told that even with treatment, there is still a 50% chance that a tumor could return within 3 years. Dr. Shrieve, the radiologist oncologist gave us this information. It was a little hard to hear, but we were okay. He left us alone to wait for Dr. Glantz, the chemo oncologist to come in. Jordon and I talked, and we discussed how no matter what, everything has been, and will continue to be in the Lord's hands. We will continue to put our faith in our merciful Father in Heaven, and know that we can make it with his help.

Dr. Glantz, is by far our most favorite Dr. so far. He sat us down, and gave us the simplified, easy to understand version of everything that has happened to Jordon so far. Then he told us everything we should expect over the next year.

We were originally told that Jordon wouldn't begin treatment for another two months or so, but the doctors decided that Jordon is doing so well. He will begin treatment next week. His treatment will consist of daily radiation therapy for 5 days a week for the next 6-7 weeks. At the same time, Jordon will begin undergoing chemo therapy. He will have chemotherapy every day for the next 7 weeks. Then he will cut back on the chemo, and will have it 5 days every month for the next year or so. At that point, they will evaluate how Jordon is doing, and we will go from there. Dr. Glantz was very kind and answered every single question we had, and then insisted we call and ask questions as they pop up because he knows we will have more questions throughout the treatment. He was very humorous, and told Jordon that they better become friends because they will be working together for a long time. :o)

Dr. Glantz also reiterated that Jordon's condition was not hereditary. His family genes didn't cause this, and his family genes won't cause it in our children. Big sigh of relief there (although we already knew this because this is what the neurologist said as well, but it is still nice to have more than one person telling us).

Well more updates later. Again, I apologize for slacking the past few days. Things get crazy!!! Have a good night everyone!

3 comments:

masonmadness said...

I'm glad he is still doing so good. Good luck with the treatment next week. I've heard it's pretty tough so we will be praying for him. Tell him I said hello.
Lynise

Briana said...

Hi guys. I really need to try some of this wonderful food that chef Jordon makes :) Our prayers will be with you both. We love you tons.

Candace and Brian said...

Heidi thanks for the update. My heart just goes out to both of you but I know you have such a strong foundation that you will make it through anything and everything. Good luck with the treatments. You are in our prayers daily.